The GOSH-to-Home Chronic Ventilation Service looks after approximately 300 children on long term invasive or non-invasive ventilation, in inpatient/out-patient settings, as well as supporting local community teams. Our team consists of multi-disciplinary professionals including respiratory paediatricians, clinical nurse specialists, sleep physiologists, neuro-respiratory physiotherapists, play therapist, working in collaboration with other specialty teams such as palliative care, ENT, Neurology.
To empower professional colleagues caring for this growing home-ventilated population, we have designed our course to share and disseminate specialist knowledge and skills in long term ventilation to health care professionals involved in the day-to-day care of these children.
Sorry this course is currently Fully Booked.
If you wish to be on the mailing list for The Paediatric Long Term Ventilation Course 2021 please email
Garry.rendle@gosh.nhs.uk or Victoria.robinson@gosh.nhs.uk
Long Term Ventilation Course Program (2020)
Day 1 (26th Feb 2020)
Session | Parallel Session |
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Welcome and introduction Dr Elaine Chan Consultant in Respiratory Medicine, Sleep and Non-invasive Ventilation |
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Sleep disordered breathing in children Dr Francois Abel Consultant in Respiratory Medicine, Sleep and Non-invasive Ventilation |
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NIV in children: indications, types of NIV, modes of NIV, interface Dr Elaine Chan |
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Sleep studies and NIV Matt Davies, Senior Sleep Physiologist |
Coffee break
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Assessing a child on NIV in the community Garry Rendle, NIV CNS |
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Pressure sores in NIV and Tr LTV patients – update on management TVN/Victoria Robinson NIV CNS / TrLTV CNS/ | Weaning vs escalation in ventilation Dr Martin Samuels Consultant Respiratory Paediatrician in Sleep Medicine |
Secretion management in NMD (including Cough Assist: principles and practicalities) Miss Lisa Edel Respiratory physiotherapist
| Stepping down from acute ventilatory support to long term support Dr Martin Samuels |
Lunch break
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Workshop 1a: Ventilators: choice; modes; hands-on time with machines
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Workshop 1b: Ventilators: choice; modes; hands-on time with machines
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Workshop 2: Interfaces: choice and fitting |
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Workshop 3: Trouble shooting clinical and equipment problems
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Coffee break
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NIV adherence: Evidence and practicalities Dr Elaine Chan, Dr Vicki Barber Lizzie Penn, Play Specialist
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Open Forum · Case based scenarios o Decannulation from LTV to NIV (Ventilation CNS Team) o NIV and enteral feeding (Katie O’Brien/Garry Rendle) · Q and A |
· Closing remarks | Dr Elaine Chan |
Day 2 (27th Feb 2020)
Session
| Parallel Session |
Going home on long term invasive ventilation Dr Ranjan Suri Consultant Respiratory Paediatrician |
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Tracheostomy care Kate Harkus, Practice Educator |
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Speech and language therapy for LTV patients Vicky Thorpe SLT |
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Coffee break |
Long term ventilation (invasive and non-invasive) in neuromuscular patients - Including challenges of SMA I Dr Elaine Chan
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Decision making in initiating on LTV (invasive ventilation) - ethical framework Dr Joe Brierley, Consultant in paediatric intensive care
| Challenges in long term ventilation discharge planning - welfare support and home adaptation for LTV patients Jenny Taylor, LTV CNS Emma Lear, Welfare Advisor Royal Brompton Hospital |
Lunch break
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Workshop 1: Ventilators: choice; modes; hands-on time with machines |
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Workshop 2: Ventilators: choice; modes; hands-on time with machines |
Workshop 3: Circuit choice - which circuits for which vents; troubleshooting: clinical and equipment problems e.g. Alarms and what they mean; blocked trachy; leak. |
Coffee break
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“When enough is enough - Making difficult decisions and managing end of life care” An interactive session in which we will share our experiences across the interface between children and young adults
Prof L Turner-Stokes, Professor in rehabilitation and palliative care medicine, King’s College Hospital |
Open Forum · Case based discussion · Q and A session |
Closing remarks
| Dr Elaine Chan |
