The GOSH-to-Home Chronic Ventilation Service looks after approximately 300 children on long term invasive or non-invasive ventilation, in inpatient/out-patient settings, as well as supporting local community teams. Our team consists of multi-disciplinary professionals including respiratory paediatricians, clinical nurse specialists, sleep physiologists, neuro-respiratory physiotherapists, play therapist, working in collaboration with other specialty teams such as palliative care, ENT, Neurology.
To empower professional colleagues caring for this growing home-ventilated population, we have designed our course to share and disseminate specialist knowledge and skills in long term ventilation to health care professionals involved in the day-to-day care of these children.
Please apply for the course using this web page.
Chronic Ventilation Course Program (2019)
Day 1 (7th Mar 2019)
Time | Session | Parallel Session |
8:45-9:30 | Registration |
9:30-9:45 | Welcome and introduction Dr Elaine Chan Consultant in Respiratory Medicine, Sleep and Non-invasive Ventilation |
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9:45-10:15 | Sleep disordered breathing in children Dr Francois Abel Consultant in Respiratory Medicine, Sleep and Non-invasive Ventilation |
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10:15-10:45 | NIV in children: indications, types of NIV, modes of NIV, interface Dr HL Tan Consultant paediatrician, Royal Brompton Hospital | Weaning vs escalation in ventilation Dr Martin Samuels Consultant Respiratory Paediatrician in Sleep Medicine |
10:45- 11:00 | Sleep studies and NIV Matt Davies, Senior Sleep Physiologist |
11:00 -11:15 | Coffee break
|
11:00-11:30 | NIV compliance: Evidence and practicalities Dr Elaine Chan, Vicky Robinson, NIV CNS Lizzie Penn, Play therapist |
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11:30-12:00 | Assessing a child on NIV in the community Garry Rendle, NIV CNS | Stepping down from acute ventilatory support to long term support Dr Martin Samuels |
12:00-12:30 | Secretion management (including Cough Assist : principles and practicalities) Miss Lisa Edel Respiratory physiotherapist |
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12:30-13:15 | Lunch break
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13:15 -13:45 | Workshop 1a: Ventilators: choice; modes; hands-on time with machines Senior Sleep Physiologists |
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13:45 -14:15 | Workshop 1b: Ventilators: choice; modes; hands-on time with machines Senior Sleep Physiologists |
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14:15-14:45 | Workshop 2: Interfaces: choice and fitting Garry Rendle, NIV CNS |
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14:45 -15:15 | Workshop 3: Trouble shooting clinical and equipment problems Victoria Robinson, NIV CNS |
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15:15 -15:30 | Coffee break
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15:30-16:15 | Panel discussion: Commissioning and coordination of care provision for unwell LTV patients
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16:15-17:15 | Open Forum · Case based scenarios · Q and A |
17:15-17:30 | · Closing remarks | Dr Elaine Chan |
Day 2 (8th Mar 2019)
Time | Session
| Parallel Session |
09:30-10:00 | Going home on long term invasive ventilation Dr Ranjan Suri Consultant Respiratory Paediatrician |
|
10:00-10:30 | Tracheostomy care Kate Harkus |
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10:30-11:00 | Pressure sores in NIV and Tr LTV patients – update on management TVN/Vicky Robinson NIV CNS / Emilie Maughan LTV CNS |
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11:00-11:15 | Coffee |
11:15-11:45 | Palliation and withdrawal of ventilation Palliative Care Team/NIV CNS |
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11:45-12:45 | Challenges in discharge planning: · OT and housing · Care packages and continuing care framework · Personal health budgets TBC | Long term ventilation (invasive and non-invasive) in neuromuscular patients - With a special mention of SMA 1 Dr Elaine Chan |
12:45-13:30 | Lunch break
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13:30-14:00 | Workshop 1: ventilators and circuits Sleep physiologists/ Practice educators |
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14:00-14:30 | Workshop 2: trouble shooting: clinical and equipment problems Practice educator/ Senior nurses |
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14:30- 14:45 | Coffee |
14:45 – 15:30 | Panel discussion: Welfare support for LTV patients (NIV and Tr LTV) |
15:30-16:30 | Open Forum · Case based scenarios · Q and A session |
16:30-16:45 | Closing remarks
| Dr Elaine Chan |
